Strengthening policy advice on genetic testing as an instrument for disease prevention - evaluation of policy issues for direct consumer access

Project Status
Completed
November 15, 2017
September
27
2013
At-a-Glance
European Academies Science Advisory Council - EASAC, with the involvement of the InterAcademy Medical Panel (IAMP). Developments in genetics are facilitating the predictive screening of disease. But tests for complex disorders, of questionable value, are being offered direct to consumers through the internet. This project, the first collaboration between the academies' networks EASAC and FEAM, aims to inform policy-makers and the public about the balance between encouraging responsible testing and protecting against unsound testing.
Key Contacts

Lead: European Academies Science Advisory Council - EASAC.

European Academies Science Advisory Council - EASAC, with the involvement of the InterAcademy Medical Panel (IAMP). Developments in genetics are facilitating the predictive screening of disease. But tests for complex disorders, of questionable value, are being offered direct to consumers through the internet. This project, the first collaboration between the academies' networks EASAC and FEAM, aims to inform policy-makers and the public about the balance between encouraging responsible testing and protecting against unsound testing.